IGF 2020 Public Collaboration On Multi-Stakeholder Health Data Values

    Time
    Wednesday, 4th November, 2020 (16:00 UTC) - Wednesday, 4th November, 2020 (17:30 UTC)
    Room
    Room 1
    About this Session
    The session will include presentations on Block-Chain and Machine Learning for the Health Care sector; insights in to eHealth, and an open discussion on eHealth matters for the future.
    DC

    Data Driven Health Technologies

    Round Table - U-shape - 90 Min

    Theme
    Description

    An open collaboration, of multi-stakeholders with backgrounds in medicine; research; data science; computer systems, application development; public policy and economics; privacy; law; accounting; insurance; mathematics, the public and so forth, so as to enable the development of a common set of principles, values and definitions for eHealth Systems development by design. The application development environment and the source data sets get more complex daily, and effective systems design is key to excellence in outcomes. A common language, with a focus on establishing critical attributes of data inputs and outputs is the focus of this session.

    Relevance to IG

    The DC is developing a document on shared values, principles and definitions for approaching multi-stakeholder effective development for ehealth care systems through the vision of establishing excellence in data quality. Data drives the systems old and emerging (AI. block chain etc.). This document is to be used as an introduction by stake-holders gathering to develop health data systems by design, which attempts to mitigate the unpredictable risk of sub-optimal outcomes when developing technology solutions . These stake-holders are Doctors, Nurses, Patients, Hospital Administration, Computer Scientists, Data Scientists, Policy Makers, Privacy Professionals, Lawyers, Accountants, Financiers, Stock-holders, the public etc. Education is key to establishing a common language for application development. If the stake-holders speak the same language the data definitions are clearer and the expected outcomes will carry lower risk leading to better decision making on the part of the clinician, hospital administrator and the patient user. This approach will also assist companies developing pharma products and patient support technologies such as artificial limbs and so forth. These products and services are increasing supported by the Internet of Things, Artificial Intelligence, Block Chain and of-course traditional ICTs for systems such as Telemedicine. eHealth as a specific area for technical systems design by multi-stakeholder discussion has not had its place until right now at IGF and with this session for IGF it will have its critical need for, place. This discussion is important not just due to Corvid 19 but for overall health care for the global population.

    Relevance to Theme

    By building a common understanding through language and values, multi-stakeholder teams developing and operating health care systems and outcomes will be able to build trust amongst each other so as to enable effective, timely, cost effective outcomes that meet the requirements of healthcare for the providers as well as patients. Government , business and non-profit will see a beneficial return on the human and financial investment.

    Organizers

    The members of the Dynamic Coalition: Ms. Amali De Silva - Mitchell; Ms. Janna Belote; Mr. Robert Guerra; Dr Bimalka Seneviratne; Dr Champike Attanayake; Dr Galia Kondova ( University of Applied Sciences & Arts Northwestern Switzerland - presenter on Block Chain); Mr. Jorn Erbguth (Head of Technical Insights Geneva Macro Labs & Academic Researcher - presenter on Machine Learning); Ms.Marina Shentsova

    Speakers

     Ms Amali De Silva-Mitchell ; Mr Robert Guerra ; Mr Jorn Erbguth; Dr Galia Kondova; Dr Pramilla Senanayake; Mrs Lakmini Shah; Dr Katerina Sideri; Dr Bimalka Seneviratne; Mr Herman Ramos; Mr Yao Amevi Amessinou Sossou: Dr Champike Attanayake;  Mrs Janna Belote; Ms Marina Shentsova;

    Onsite Moderator

    Amali De Silva - Mitchell DC Coordinator

    Online Moderator

    Open call to online participants

    Rapporteur

    DC team will record and report

    SDGs

    GOAL 1: No Poverty
    GOAL 2: Zero Hunger
    GOAL 3: Good Health and Well-Being
    GOAL 4: Quality Education
    GOAL 5: Gender Equality
    GOAL 6: Clean Water and Sanitation
    GOAL 7: Affordable and Clean Energy
    GOAL 8: Decent Work and Economic Growth
    GOAL 9: Industry, Innovation and Infrastructure
    GOAL 10: Reduced Inequalities
    GOAL 11: Sustainable Cities and Communities
    GOAL 12: Responsible Production and Consumption
    GOAL 13: Climate Action
    GOAL 14: Life Below Water
    GOAL 16: Peace, Justice and Strong Institutions
    GOAL 17: Partnerships for the Goals

    Reference Document: https://www.speedoftrust.com

    1. Key Policy Questions and related issues
    Role of new technologies, issues, risks, limitations, safety, education etc. in the Ehealth Space.
    Universal health care access assisted by technology to meet UN SDG #3.
    Ethics, Standard Setting , Value Propositions for technology use in the Ehealth Space.
    2. Summary of Issues Discussed

     

    Block chain opportunity  for the Ehealth care space was presented . A discussion of the data types supported by this technology,  as well as the typical types of records conducive to management by block chain were noted  .  The opportunities for data sharing,  and issues for privacy were also noted ,

    Mobile Technologies as a tool for bridging the Digital Divide were discussed within the context of ehealth.

    How Machine Leaning is conducted was reviewed and the risks for data input, processing and output discussed and illustrated with examples in to eHealth.The quality of the algorithms and risk of data bias was noted with extension to AI. New Technologies such as Quantum Technologies , Holograms and their uptake in the public Ehealth Space were also noted.

    The value of stakeholders understanding each other when developing policy, procedures and technology was highlighted within the context of building trust, so as to speed up evidence based effective end results.

    The value propositions for multi-stakeholders were illluminated by show casing the ability of these Emerging Technologies to assist with speed to achievemnt of SDG#3 for universal  health care services globally ,in innovative new ways, wirh  opportunities to transcend issues such as complexities in data sharing, intellectual property, start up costs and so forth, while providing efficient, auditable, effective solutions within the clinical and administrative spheres of ehealth.

    Further work in ethics, in all of the existing technologies and emerging technology areas was stressed.

     

     

    3. Key Takeaways

    Acknowledge that existing and emerging technologies can support reaching UN SDG #3, but good standards, education and knowledge sharing  with robust  ethical frameworks are  key to successful outcomes. 

    6. Final Speakers

    Moderator: Ms. Amali De Silva - Mitchell

    Presenter on Block Chain for Ehealth : Dr. Galia Kondova 

    Presenter on Mobile Ehealth and Digital Divide : Mr. Herman Ramos 

    Presenter on Machine Learning and AI for Ehealth :Mr. Jorn Erbguth 

     

    7. Reflection to Gender Issues

    The panel with moderator of 4 persons was balanced men to women.  All topics are gender neutral. Regional represenation and affiliations : Asia , Americas, Africa, Europe . Youth represented on panel.

    8. Session Outputs

    3 presentations on independent Ehealth topics : block chain, mobile tech and the digital divide , machine learning and answers  provided to questions from audience.

    10. Voluntary Commitment

    Activities plan of Dynamic Coalition on Data Driven Health Technologies